Why I am back after so long...

I stopped blogging because I was overwhelmed with the fact that I have EDS. In the past few months, I have overcome that. I have decided that I don't have a disease, just a little disorder. I am still determined that I won't let it define me, I will define it. 

A couple of weeks ago I got to talk to my EDS Specialist, Dr. Mark Lavallee for a long time.  We talked "doctorly" stuff and then we talked friend stuff. We talked and talked and talked, it was great and perfect timing, I had a really rough week. Talking to Mark made my month. If you don't know Dr. Mark Lavallee personally or as a Doctor, it's hard to fathom why we ALL love him so much. I know him, admire him and love him and everyone I know that knows him feels the same way. I think we all agree that Mark is an Angel that God put on Earth. I've never known another single person that has inspired so many (literally, many THOUSANDS) of people so immensely. 

After Mark and I talked I thought about blogging again but didn't. Then tonight I saw a post from the mother of one of my Ehlers Danlos friends and I knew I had to start blogging again. My post from earlier has a bit about Emily and her story. It also has a little "story" about my friend Amanda, she passed away in December from Vascular EDS. 


I decided to start blogging again for numerous reasons: *My friend Katie said I should! *Some of my greatest inspiration comes from some of the blogs I have read. *I need a way to "get it out" and talk about it without bombarding my closest friends! *My biggest goal for EDS is AWARENESS and Education, blogging raises awareness and offers education to others. *I want my friends and family to have a general idea of what is going on with me "health-wise", then I don't have to explain it 500 times. 


So, here we go again!


Gentle Hugs!
Ila