A JOURNEY WITH NO REAL DESTINATION

In December of 2010 I was diagnosed with Lupus/Mixed Connective Tissue Disorder. In March of 2011, I was diagnosed with Ehlers-Danlos Syndrome, type 3. The MCTD/Lupus Dx was incorrect, they should call EDS "ACTD", (All Connective Tissue Disorder)!
Since my Ehlers-Danlos diagnosis, I have read a few wonderful blogs that have inspired me and touched my heart. One blog brought me to my knees; I cried, my heart broke, I laughed, I smiled and I identified with this Katie's story. Reading her journey made me realize that I wanted to share my own.
Details are not something I spare and I have never been a girl of few words. I hope I inspire you, educate you, motivate you and touch your heart. I hope by writing this, I learn, understand and accept my new journey...Is there a destination?

Thursday, April 12, 2012

It's that time again!

JUST INCASE ANY OF YOU CARE, AND IN THE EVENT THAT YOU HAVEN'T HEARD THE NEWS! 
Registration for the 2012 Learning Conference has opened. The Conference is organized by EDNF (www.ednf.org) and it very beneficial for anyone that wants to learn more about EDS and all his friends and family! This year, for the first time, CME's are also being offered. I learned a lot last year and best of all, I made some great friends!!!!! I'm not going this year, I am having a "Spa weekend" with some of those friends that I met at the conference last year! 

Gentle Hugs!

Your Bendy Friend! 
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