A JOURNEY WITH NO REAL DESTINATION

In December of 2010 I was diagnosed with Lupus/Mixed Connective Tissue Disorder. In March of 2011, I was diagnosed with Ehlers-Danlos Syndrome, type 3. The MCTD/Lupus Dx was incorrect, they should call EDS "ACTD", (All Connective Tissue Disorder)!
Since my Ehlers-Danlos diagnosis, I have read a few wonderful blogs that have inspired me and touched my heart. One blog brought me to my knees; I cried, my heart broke, I laughed, I smiled and I identified with this Katie's story. Reading her journey made me realize that I wanted to share my own.
Details are not something I spare and I have never been a girl of few words. I hope I inspire you, educate you, motivate you and touch your heart. I hope by writing this, I learn, understand and accept my new journey...Is there a destination?

Friday, April 27, 2012

FLIMSY FLOPSY FRIDAY


So my friends, we’ll call today “FLIMSY FRIDAY” because that’s the kind of day I have had! What in the world causes these pitiful proprioception days???? I fell two times within 5 minutes of getting out of bed this morning! The first time I stumbled over a speck of dust on the floor and the second time was far more tragic; I tripped over my big toe. No worries my toe is fine, my knee is a bit achy! So! If this were not enough flailing and falling for the day, I fell a third time and this time I did a great job on my ankle. Yippeeee! Three Cheers for Ila!  The third time was the worst, I was turning in “lesson plans”  at the Mormon church. (Disclaimer- I am not Mormon, just a bit nerdy! I love Genealogy and Genetics so I am teaching a “genetic genealogy class series to some LDS folks).  WELL, so the last fall was a charm because OTHER people were around, it wasn’t just my family. I wanted to cry but I don’t like crying in front of people so I loopedly-loppedly limped away. I drove a little bit and stopped at this little pond (maybe it’s a lake, who knows) and I sat there for an hour or so, I cried a few little tears (that hurt) but mostly just relaxed! Surprise, surprise, I fell asleep too. 
Speaking of relaxing! How often do you relax? Do you ever find yourself just going and going like the energizer bunny because you are afraid you’ll “Crash” if you stop? I’ll admit it; I do and I hope I’m always that way, it keeps me busy! I do enjoy the calm and quiet of nature. Everywhere we have lived in the past few years, I have had my “calm” place, I don’t pick it, it picks me. In Belgium it was a little garden about a block from our home, I loved it! In Indiana it was actually a cross in the middle of the ND campus but it was pretty secluded given that it was at Notre Dame. My “relax” places seem to scream at me: “ILA, be still and enjoy” and I do, every time I am in one of my happy places. Ahhhhh. I wish I could bottle the feeling I encounter when I step into one  of my happy places. This little pond smells amazingly sweet and it’s not just in the spring, it was that way last summer, fall and even during the winter. I think I just love the country. 
If you don’t have a happy place to relax, please find one. Mine are always outdoors! Fresh air is healthy for everyone, sunshine makes my heart smile and it’s always great just to have some time with myself and with God’s wonderful masterpieces. I can’t say that my happy places always reenergize my body but I  can guarantee they always reenergize and stimulate my soul. I believe that 100% of the time, how we feel in our hearts and minds is even more important than how we feel physically. Ponder this for a moment; if your body feels like a million bucks but your sad or mentally drained, that has a drastic effect on your physical being and guess what? I bet you a dollar that you won’t feel like a million bucks anymore! Most things in my life I have no control over whatsoever but the one thing I can control is my attitude/perspective. 
I hope you all have a wonderful weekend! Take some time to “get away” to your special and happy place. If you can’t get there physically, close your eyes and imagine yourself there- Wherever you find yourself, just relax, enjoy the moment, give thanks for another wonderful day and get ready; there’s more just ahead! 
Peace and Hugs,

Limpy Lou!   P.S. This photo is on the opposite side of the road from one of my happy place where I fell asleep today!  :o)

2 comments:

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  2. I have thoroughly enjoyed reading your blog. I hear your voice as I read what you have written. As long as I have known you, there has been something special about you and words; you are consistently real, genuine and transparent. I have been telling you for over a decade; you need to be in the medical profession, GO to medical school, do NOT settle for less. There is a magic within your soul that few posses; I have yet to meet another as caring, nurturing and giving as you. I shall never forget the smiles you brought to some of the most despondent patients in the unit; we all miss your infectious smile. Please continue to write, I am confident it inspires those that take time to read your blog. I had a patient last week that inquired about finding an Ehlers-Danlos specialist for her daughter; I do not know of any in this area but I did refer her to your blog. Keep up the good work Ila!
    Dr B

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