A JOURNEY WITH NO REAL DESTINATION

In December of 2010 I was diagnosed with Lupus/Mixed Connective Tissue Disorder. In March of 2011, I was diagnosed with Ehlers-Danlos Syndrome, type 3. The MCTD/Lupus Dx was incorrect, they should call EDS "ACTD", (All Connective Tissue Disorder)!
Since my Ehlers-Danlos diagnosis, I have read a few wonderful blogs that have inspired me and touched my heart. One blog brought me to my knees; I cried, my heart broke, I laughed, I smiled and I identified with this Katie's story. Reading her journey made me realize that I wanted to share my own.
Details are not something I spare and I have never been a girl of few words. I hope I inspire you, educate you, motivate you and touch your heart. I hope by writing this, I learn, understand and accept my new journey...Is there a destination?

Thursday, May 24, 2012

I LOVE KATIE

Shortly after my EDS diagnosis I was playing online and came across a blog, the more I read, the harder I cried, the bigger I smiled and I knew I'd found a friend. KATIE. I emailed Katie, we started talking on the phone and via email, we finally met and a life-long friendship was formed. We laugh, we cry, we reminisce, we question, we dream! Katie inspires me tremendously, we both have a common goal....WE WILL NOT LET EDS or anything else STOP US...EVER! 



 Katie as a Zebra

Katie and Dr. Mark LaVallee

Do something wonderful for yourself, visit Katie's blog at www.lifeasazebra.com or
 CLICK HERE FOR KATIE

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