ZZZZzzzzzz. Did you hear me
snoring Saturday night? I bet you didn’t because I wasn’t! I had a
polysomnogram done on Saturday night and all day Sunday I had a test called a “Multiple
Sleep Latency Test”. I am happy to report that I did not snore at all during
either study, however, I did talk in my
sleep and was very embarrassed about it! Oooops! Leave it to me to talk
non-stop, even in my sleep!
I was a bit apprehensive
about this study, I thought I would not be able to sleep with all the wires
hooked up to me. Well, I was wrong, I slept. I haven’t gotten the report yet
but the guy that did my Saturday night sleep study said that I didn’t have any
snoring or apnea but I did have a good bit of movement. My super-awesome tech
on Sunday would not tell me much of anything but that’s okay, I’ll find out
soon enough! I told my husband that I really liked my Tech from Sunday, her
name was Stephanie and she is great! She’s the only person I have ever met that
would talk to me for 2 hours and then say “Ila, you need to go take a nap for
15 minutes!”
I had a sleep study because
I am really tired a lot, especially in the morning. My cousin Melinda said “You
are tired because you NEVER stop”. Well, that probably has something to do with
it but just imagine how much more I could get accomplished if I woke up bright
and refreshed? It would be amazing! I hate it when I feel lethargic, I’m like
the Energizer Bunny, I like to keep on going and going and going! Much like
every EDSer I know, I do hit that “Brick Wall” occasionally and that really
bugs me. I never see it coming and I can just be bouncing through my day and
BOOM! It stops me right in my tracks. It may be at 11AM, 3PM, 8PM or anywhere
in between but when I hit that wall, I must stop and rest. You know, it’s that
feeling where everything sounds like the girl on Snoopy, but in a tunnel, you
get a little dizzy, well a lot dizzy and you break into a cold sweat. Thank
goodness that doesn’t happen often, I like to be in control, not some freaky,
misunderstood reaction in my body. To tell you all the complete truth, since I
started going to the gym regularly, it hasn’t happened. Over the past 6 months
or so, I have really focused on making my body stronger and it’s been great! My
friends, I don’t have a choice and guess what? NEITHER DO YOU! If we don’t beat
EDS it WILL beat us. Now I don’t know about you but I’ve got the boxing gloves
on and I know who the lightweight champion is in this fight!
If you have any
questions about sleep my sleep study, let me know and I’ll answer as best I
can! It wasn’t as miserable as I had anticipated but it was long and a bit
boring before I made friends with Steph the sleep tech….after that it was a
breeze! Steph and I ordered food
yesterday afternoon and sadly enough, I got food poisoning! Yes, today has not
been a fun day. I’ve just been pushing fluids like crazy so that I don’t have a
potsy day tomorrow. I’m not sure how well that works when your tummy is this
icky but we shall see tomorrow~
On another note, I haven’t
blogged as much in the past few weeks as I would have liked to but I’ve been
pretty busy. So, let me do a quick update. My most recent prolo session was 10
days ago. My Doctor retired from the Army and is working in the “real world”
now, so we have to have a “new patient appointment” to decide what our course
of action is going to be. Have I told y’all that I love Prolotherapy? Just
checking! Even more, I love getting adjusted and I missed that this week too.
Let me clarify something here for those of you with EDS. Please do not just let
any “Joe Blow “ adjust ANY part of your body. Manipulation is a very “touchy”
thing with EDS patients. You don’t want to go to someone that is going to hurt
you any worse. DO NOT let anyone adjust your neck!!!! I had my neck adjusted
several times by a Doc that I used to work with and heard a horror story (from
him) and never let anyone adjust my neck again. My neck is a problem area for
me anyway and I have had massive injury there. I hold my cervical vertebrae in
high regard and just don’t trust folks to get anywhere near my neck when
manipulation is involved. Well okay, I do let my favorite Doc adjust my neck.
Make sure if someone adjusts your neck it is a VERY GOOD D.O. not a
chiropractor, not an M.D, not your friend Sally, not your husband or wife. THIS
IS YOUR NECK WE ARE TALKING ABOUT! Be careful with adjustments anywhere but I’d
say your neck should top the careful list!
I’m having a very big
debate with myself on whether or not to have genetic testing done for Vascular.
If I do have it done I’ll never tell the results. Have any of you struggled
with this decision? Are there any of you
that have what they term as “severe type 3” that have been tested?
Typically “overly hypermobile” type 3 EDSers don’t have a crossover with type
4. I’d love to hear experiences! I’ll do
a blog about this in the next couple of days. Oooops, I forgot the “are you a
liar” blog. I’ll do that one soon as well!
Happy and gentle hugs to
you all: my Bendy Friends and those of you that care enough to read about what
is going on with someone you care about that has EDS.
Ila
